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Elopement Patterns and Caregiver Strategies Research Study

Date Last Revised: 
July 13, 2016
Date Published: 
April 14, 2016

New IAN Survey to Delve Deeper into Elopement and Wandering

This study closed in July 2016 to new participants. Thank you to all who took part.

A 2012 IAN study of more than 1,200 families with children between the ages of 4 and 17 found that parents reported that nearly half of children with ASD had attempted to elope at least once. The study also found that the risk for elopement increased with the severity of autism. Nearly half of those parents said that their child eloped with the intention to go somewhere or do something, while only a tenth reported that their child eloped because he/she was confused, sad and lost.1

IAN Research is now delving deeper into the elopement and wandering patterns of children and dependent adults with autism, and looking at the prevention strategies that caregivers implement, in our Elopement Patterns and Caregiver Strategies Research Study.

Who May Participate?

  • All parents of children with ASD ages 4 and older are eligible to participate
  • Legally authorized representatives of adults with ASD ages 18 and older

Eligibility does not require a history of elopement and we encourage all families to participate.

Those who complete the survey will be entered into a drawing for one of ten $100 Amazon gift cards.

Study Requirements

Depending on history of elopement, the survey will take between 10 and 30 minutes to complete.  The survey may be completed in more than one sitting.

Current IAN Research participants

You can find this questionnaire, and others, listed in your IAN Family Profile under the name of your child with ASD. To access your profile, log in to IANresearch.org. While you are there, be sure to complete other important surveys, such as the Birth and Diagnosis Questionnaire and the School Services Questionnaire.

Current SSC@IAN participants

You can find this questionnaire, and others, listed in your IAN Family Profile under the name of your child with ASD. To access your profile, log in to IANresearch.org

Not an IAN Research participant and want to participate?

If you have a child with ASD (under 18) or you are the legally authorized representative of an individual with ASD 18 or older, please join IAN Research and complete your Family Profile. Surveys appropriate for each family member, including the Elopement Patterns and Caregiver Strategies Survey, will appear under family member names.

IAN Research also welcomes independent adults with ASD.

Thank you to all who participate in IAN Research. Your involvement leads to discovery. Together we can provide information and support to improve policy and programs to support individuals and families affected by autism.

Need Assistance?

IAN’s Research Manager, Dr. Alison Marvin, can be reached at 443-923-4143, 866-348-3440 (toll free), or researchteam@IANproject.org.

Interactive Autism Network (IAN) Research Project at Kennedy Krieger Institute (Johns Hopkins Medicine IRB #: NA_00002750). Principal Investigator: Dr. Paul H. Lipkin.

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References: 
  1. Anderson, C., Law, J.K., Daniels, A., Rice, C., Mandell, D.S., Hagopian, L. & Law, P. (2012). Occurrence and family impact of elopement in children with autism spectrum disorder. Pediatrics, 130(5):870-877.