Kaiser Permanente Community
Welcome to IAN, Your Autism Research Home
Researchers are interested in staying in touch with families who participated in the Kaiser Permanente Autism Family Biobank Study.
As addresses and emails change, they don’t want to lose you! Researchers hope to share findings and possibly offer opportunities to take part in future related studies or surveys. The Kaiser Permanente Autism Family Biobank Study team is collaborating with the Interactive Autism Network (IAN) to create an online registry and resource for families called the Kaiser Permanente Community @ Interactive Autism Network or KP@IAN.
If you did not participate in the Kaiser Permanente Study, you are welcome to peruse the articles here, and, of course, families who did participate are invited to read the features throughout the site.
At KP@IAN, you will find:
- Findings from studies that have used Kaiser Permanente information.
- Information that you tell us is important to families like yours.
- Special articles to keep you informed about the latest autism research, including studies that were completed using the information you contributed.
- Features about other families who are participating in KP@IAN and who want to share their experiences with you.
- Articles about the researchers who are working with the study information that you provided.
We will also send you a newsletter four times a year by e-mail and inform you about special webinars with autism researchers and clinicians.
If you participated in the Kaiser Permanente Autism Family Biobank Study, a coordinator from your study will ask you if you would like to participate in KP@IAN. If you agree, you will receive an email from KP@IAN. Just follow the link in that email and register. This will allow us to keep you informed about the research you have participated in and let you know about future research opportunities.
Through KP@IAN, autism researchers will be able to stay in touch with you and other Kaiser Permanente Autism Family Biobank Study families. If you have any questions, please contact your Research Coordinator, Jaimie Toroney, at Research@IANproject.org or at 443-923-4153.
Autism Research from Kaiser Permanente
Learn about other autism research that involves Kaiser Permanente families.
Your Research Coordinator
Jaimie Toroney, MHS, your KP@IAN Research Coordinator, is a resource for you, and we hope you will not hesitate to contact her at 443-923-4153 or Research@IANproject.org. She can assist with KP@IAN registration and answer your questions.
Jaimie, who hails from Long Island, NY, has a Master’s degree in Health Science from Johns Hopkins Bloomberg School of Public Health, and a Bachelor's of Science in Human Development with a concentration in Cognitive Neuroscience from Cornell University. Early in her career, she worked as a developmental habilitation specialist and therapeutic staff support for people with intellectual disabilities, mental illness, and traumatic brain injury.
Before joining IAN in 2014, she worked as a data research project manager at the American Urological Association. She also has been senior research program coordinator at Johns Hopkins Bloomberg School of Public Health, Department of Mental Health, and has worked on Alzheimer’s disease research.