As community involvement in the medical research process is increasing, it is improving both the relevance of the research to families and the availability of treatments. Learn how other communities are influencing research in this informative report from National Public Radio.
News from IAN
Training parents how to communicate with their preschool-aged children with autism shows promise for long-term gains in those youngsters, according to a new study.
Joshua Gordon, M.D, Ph.D., the new director of the National Institute of Mental Health, has been appointed chairperson of the Interagency Autism Coordinating Committee (IACC).
On July 19, 2016 the US Interagency Autism Coordinating Committee (IACC) met. The IACC coordinates autism services and research programs spearheaded by the US government. Find out what happened at the meeting and how you can comment on autism research and services priorities.
An oversensitivity to noise can lead to safety issues, including self-harm, harm to others, and seizures, in children with autism, according to preliminary research by the Interactive Autism Network.
Kiely Law, IAN's Research Director, talks about the choices she made while parenting a child with autism.
IAN's Paul Lipkin, MD, and Kiely Law, MD, MPH, reported to the Interagency Autism Coordinating Committee (IACC) on new data on bolting and auditory sensitivity. Learn about these important findings.
Dr. Kiely Law and Linda Carter-Ferrier discuss how parents, individuals with autism, and researchers can help define the future of autism research in this Patient-Centered Outcomes Research Institute (PCORI) blog.
The Interactive Autism Network (IAN) is one of 20 Patient Powered Research Networks (PPRNs) that make up PCORnet, the National Patient-Centered Clinical Research Network. Together with the other PPRNs, IAN is making a commitment to helping families have access to their electronic health records for their personal use and, potentially, to help speed up autism research.
A new study by researchers at Cohen Children's Medical Center of New York says that more than 250,000 school-age children with autism or other developmental disorders wander away from adult supervision each year, risking their safety.