The Interactive Autism Network (IAN) is one of 20 Patient Powered Research Networks (PPRNs) that make up PCORnet, the National Patient-Centered Clinical Research Network. Together with the other PPRNs, IAN is making a commitment to helping families have access to their electronic health records for their personal use and, potentially, to help speed up autism research.
News from IAN
A new study by researchers at Cohen Children's Medical Center of New York says that more than 250,000 school-age children with autism or other developmental disorders wander away from adult supervision each year, risking their safety.
A new report by the American Academy of Pediatrics (AAP) says pediatric health care providers play a critical role in helping children with disabilities obtain appropriate special education and related services from their schools.
A study using information provided by 2,500 families from the Interactive Autism Network (IAN) found that when there is more than one sibling diagnosed with autism in a family (a multiple-incidence family), the unaffected siblings have more autistic-like symptoms than those in single-incidence families.
A new survey by two U.S. health agencies shows that 1 in 45 children have autism, up from 1 in 80 a few years ago. However, experts, including Dr. Paul H. Lipkin, director of the Interactive Autism Network, say the increase may be due to changes in how the survey was conducted.
The U.S. Department of Health and Human Services has announced the membership of the Interagency Autism Coordinating Committee, which provides advice on research, services, and opportunities for people on the autism spectrum.
A study from Northern California says that children born less than 21 months, or more than 6.5 years, after their first-born siblings had a higher risk of autism. The researchers do not know what could have caused those results.
The Interactive Autism Network and the Simons Foundation Autism Research Initiative have announced a partnership to advance and expand internet-mediated autism research.
The Interactive Autism Network (IAN) was approved for a three-year $1.6 million funding award by the Patient-Centered Outcomes Research Institute (PCORI) to be part of PCORnet, the National Patient-Centered Clinical Research Network.
A large Swedish study of more than 1 million children found that an increase in awareness and subsequent diagnoses of autism explains the upsurge in the number of cases.