One mother shares her family's journey toward registering as donors with Autism BrainNet, which hopes to unravel the mysteries of autism through brain tissue research.
Research participation and autism
Help IAN learn more about the unique experiences and challenges that affect adults with ASD by taking part in IAN’s updated Adult with ASD Questionnaire (Principal Investigator: Dr. Paul H. Lipkin; JHM-IRB NA_00002750).
How one mom pushed to get a diagnosis for her son's rare condition, find other children like hers, and amass a database of symptoms. She calls herself a "crazy obsessed, highly caffeinated, middle of the night, internet stalking, Mommy-Detective." And she has the ear of researchers on three continents.
Many parents of children with autism wonder what the risk of autism will be in later generations. Researchers at Washington University in St. Louis turned to grandmothers in IAN to try to find out.
IAN will participate in a $4 million study funded by PCORI to research the effectiveness of mindfulness-based interventions to reduce stress.
In the hunt for knowledge about autism, scientists have looked for clues in our genes and the environment. A new project will provide an unusual resource for autism research by combining information about people's genes and medical histories into one database.
From research on mothers and grandparents to teens' difficulties with technology, IAN's project team and collaborators have presented their research at numerous scientific conferences in 2016.
This informational graphic highlights important facts about the Interactive Autism Network, its research participants, and autism studies during its 10 year history.
A new IAN Research survey is delving deeper into the elopement and wandering patterns of children and dependent adults with autism, and looking at the prevention strategies that caregivers implement.
Watch this video to learn why it is important for families and individuals with autism to join in so we can all understand more about autism’s causes, treatments, and therapies.