Research participation and autism
A decade ago, hundreds of families began gathering in clinics across North America to take part in an autism research project. They gave blood, answered questions, took tests. How have these 2,600 families influenced our understanding of autism today?
Autism is generally a lifelong condition, but there is currently very little understanding of how the brain changes in people with ASD as they age. What research is needed?
Brain researchers found some unusual differences between males and females with autism: mutations in genes related to immune system function. Read more from a report by Dr. Alycia Halladay.
From research on elopement to school services, IAN's project team and collaborators have presented their research at scientific conferences in 2017.
Information about participating in IAN's Mental Health and Suicidal Behaviors Research Questionnaire: Study has closed.
One mother shares her family's journey toward registering as donors with Autism BrainNet, which hopes to unravel the mysteries of autism through brain tissue research.
Help IAN learn more about the unique experiences and challenges that affect adults with ASD by taking part in IAN’s updated Adult with ASD Questionnaire (Principal Investigator: Dr. Paul H. Lipkin; JHM-IRB NA_00002750).
How one mom pushed to get a diagnosis for her son's rare condition, find other children like hers, and amass a database of symptoms. She calls herself a "crazy obsessed, highly caffeinated, middle of the night, internet stalking, Mommy-Detective." And she has the ear of researchers on three continents.
Many parents of children with autism wonder what the risk of autism will be in later generations. Researchers at Washington University in St. Louis turned to grandmothers in IAN to try to find out.