Are you curious about the doctors and researchers who have used the data you contributed to the Simons Simplex Collection autism research project? Here you will "meet" them and learn about their experiences and interests – and why they find autism research to be so important.
Simons Simplex Collection (SSC)
From speech development to friendships, from genes to girls' experiences, you will find articles that explore the effect of autism spectrum disorder (ASD) on the health and social well-being of people with ASD and their families.
A listing of articles produced for Simons Simplex Collection families, including researching involving their information.
Are you curious what your fellow Simons Simplex Community families are doing now, or what has come from your research participation?
Watch an online presentation, or webinar, on autism-related topics.
Autism Research Survey Results - Live
Effective November 26, 2018, the Simons Foundation took responsibility for the SSC@IAN registry. It is called the "Simons Simplex Collection" (SSC) registry.
Researchers found that most young children with autism spectrum disorder and severe language delay developed "phrase or fluent" speech by age 8, with almost half achieving fluent speech. These findings suggest that a greater percentage of children with autism "may be capable of attaining phrase speech than previously reported."
In different laboratories on opposite sides of the U.S., two researchers were waiting.
The psychiatric manual known as the DSM-5 is being revised, and the definition of autism is being revised with it. Read about the changes being made, how they improve current definitions, and the hopes and concerns being expressed by families and advocates as the await the new DSM's publication. In addition, learn how research made possible by thousands of families taking part in the Simons Simplex Collection (SSC) and IAN projects has helped to inform the process and improve the final result.