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About IAN

Date Last Revised: 
April 23, 2019

Please note that The Interactive Autism Network (IAN) is closed and no longer accepting research participants. We encourage U.S. residents to join SPARK and others to join your local research registry.

IAN, the Interactive Autism Network, was established in January 2006 at Kennedy Krieger Institute. IAN's goal is to facilitate research that will lead to advancements in understanding and treating autism spectrum disorder (ASD). To accomplish this goal, we created the IAN Community and IAN Research.

IAN is a partnership of the Kennedy Krieger Institute and the Simons Foundation, with partial funding through a Patient-Centered Outcomes Research Institute (PCORI) Award.

View our infographic to learn about IAN's achievements.

IAN Community

Illustration of community meetingThe IAN Community is an inviting library where everyone concerned with autism spectrum disorders can learn more about autism research. Everyone can participate and benefit from the IAN Community.

Our goal is to help you:

  • Understand the research process
  • Keep up with the latest research findings, news, and events
  • Understand the value of participating in autism research
  • Influence the direction of research

We hope that the IAN Community will bring individuals with ASD, their families, and friends together with researchers, therapists, educators, and other professionals in the autism field. The goal is to better understand this complex disorder through research and collaboration, and to develop effective strategies that will improve the lives of people on the spectrum.

IAN Research

IAN Research logo illustrationIAN Research is scientific study where individuals with ASD, their families, and qualified researchers throughout the United States work together to understand autism spectrum disorder. IAN Research connects researchers to individuals with ASD and their families — the people who live with autism day to day — to uncover the secrets of this complex disorder.

Without leaving home, participants provide information in a secure online setting about  diagnosis, behavior, family, environment, and services received. Participating parents report on their child’s progress over time. Adults with ASD share information about their experiences and needs. Researchers from different institutions throughout the country will work with this information to learn about the effect and interaction of factors such as genetics, environment, and treatment, as well as the current situation and needs of those affected by ASD.

Each year, many useful and innovative studies are not completed or are significantly delayed because researchers cannot find enough participants who qualify; valuable opportunities to learn about autism are lost. IAN Research matches willing individuals and families with appropriate local and national research projects. This partnership  solves one of the major difficulties that autism research projects face—recruiting enough participants.

Individuals with ASD and their families may benefit directly from this match because they will be able to participate in research that they would not have known about without IAN. Participation may also provide opportunities to learn more about ASD and its impact. More about IAN Research

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