Basic Family Information - Demographics
When joining the IAN Research Project, the first step a parent of a child with an Autism Spectrum Disorder (ASD) takes is completing a Consent Form. The Consent Form explains the IAN Research Project in detail. It is also where we gather basic demographic information from families.
The fields a parent is asked to fill in are:
- Display Name
This is the name a participant wants to appear on the entry screens in IAN Research to designate him or herself. It can be anything - a formal name, nickname, or made-up name. (Note: it is not same as the Display Name used in the IAN Community as an anonymous identity for the Discussion Forums.)
- First Name
- Middle Name
- Last Name with Suffix
Hispanic or Latino or Not Hispanic or Latino
Check all that apply: White, Black/African American, Native Hawaiian or Pacific Islander, Asian, American Indian or Alaskan Native, Other, and Unknown.
- Street Address
- Home Phone Number
- When did you begin living at this address?
Month and Year
- Have you been diagnosed with an Autism Spectrum Disorder?
Yes or No - tells us whether the parent him or herself has ever been diagnosed with an ASD.
- If Yes to ASD question above, please select your first ASD diagnosis received from a professional (i.e. physician, psychologist, psychiatrist).
Choices are: Autism or Autistic Disorder, Asperger's Syndrome, Pervasive Developmental Disorder - Not Otherwise Specified (PDD-NOS), Childhood Disintegrative Disorder (CDD), Pervasive Developmental Disorder (PDD), Autism Spectrum Disorder (ASD).
As a parent adds their children to their Family Profile, they will be asked to fill in a similar Consent Form (with demographic information) for each one.